The Spina Bifida Association, in partnership with Lurie Children’s Hospital, will hold the first annual Clinical Care Meeting in Chicago Illinois, June 28-30,2019. This meeting is an opportunity for health care professionals serving the Spina Bifida community to network, partner, and collaborate. Attendees with learn about the SBA’s Collaborative Care Network, the new Guidelines, for the Care of People with Spina Bifida, the National Spina Bifida Patient Registry, the latest research, and much more.

“I’m excited for Spina Bifida health care professionals, leaders from Spina Bifida chapters, and scientists from the Centers for Disease Control and Prevention (CDC) and the health care community, to come together with the Spina Bifida Association to network and to learn about the National Spina Bifida Patient Registry and associated research, and  processes of care that are important to the care of people living with Spina Bifida,” said, Judy Thibadeau RN, MN, SBA’s National Director of Research and Services. “The attendees at this meeting represent those who compose the Spina Bifida Collaborative Care Network, a network working together to improve the care and outcomes of people with Spina Bifida.”

The event will consist of plenary sessions that all participants will attend, followed by a series of breakout sessions that attendees can choose from. There will be plenty of opportunities for networking during the opening reception, breakfast, lunch, and in the evening.

“I hope to hear about small or simple strategies to promote independence in children with spina bifida. These strategies would be through all stages of development and be able to be incorporated by families into everyday life. I also hope to hear about any updates with latex sensitivity teaching practices and clinical experiences.”, noted Eileen Sherburne, a Clinical Nurse Specialist at the Spina Bifida Clinic at the Children’s Hospital of Wisconsin.

The Clinical Care Meeting will take place at Lurie Children’s Hospital. To register, please visit this website. Registration is limited to 150 attendees. If you have any questions, please contact Judy Thibadeau, SBA’s National Director of Research & Services at [email protected].

About Spina Bifida Association

The mission of the Spina Bifida Association is to promote the prevention of Spina Bifida and enhance the lives of all affected. We work to make a practical, positive difference every day, helping to improve care so individuals can enjoy life to the fullest. The Spina Bifida Association (SBA) provides information, resources, assistance, advocacy, and connections to help all those affected by Spina Bifida.

 

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