(Arlington, VA, Thursday, January 29, 2020) 

We are excited to announce that Sara Struwe, Spina Bifida Association’s (SBA) President & CEO on becoming elected as the Chair of the Friends of the National Center for Birth Defects and Developmental Disabilities (NCBDDD).

The Friends of NCBDDD is a coalition of government and private sector participants who work together to enhance the mission and activities of the NCBDDD. The Center works to identify the causes of birth defects and developmental disabilities; helps children to develop and reach their full potential, and promotes the health and well-being among people of all ages canva.com with disabilities.

“As the President & CEO of the Spina Bifida Association (SBA), I am focused on improving the lives and health of people with Spina Bifida, I’m very interested in the National Center on Birth Defects and Developmental Disabilities (NCBDDD). People with Spina Bifida, the nation’s most common permanently disabling birth defect that is compatible with life, as they age, are at an increased likelihood to have secondary conditions that are life-threatening, but preventable, however, they are more likely to not have regular medical monitoring of their conditions. NCBDDD’s focus on improving the health of people with Spina Bifida and other disabilities fits with SBA’s mission. I’m interested in assuring that the Center receives the support it needs to be successful in this area in particular. I feel as though the mission of SBA matches much of what the Center is about.”

SBA has been involved with the Friends of NCBDDD for many years and looks forward to growing the Friends’ activities to promote NCBDDD’s programs & mission that support all members. 

About the Spina Bifida Association: The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida. We work to make a practical, positive difference every day, improving care so individuals can enjoy life to the fullest. SBA provides information, resources, assistance, advocacy, and connections to help all those affected by Spina Bifida.

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